Some useful links for stuff that might help you understand/live with/manage CFS. Currently a work in progress as I find new things,
“A good GP”
Unfortunately I don’t have a handy url to find one of these.
If you are not happy or comfortable with your current GP then try others in the practice, or change to another practice local to you if you have that option. You need to find a doctor that is going to take you seriously and trust that you know your body and most importantly someone who you feel comfortable talking to. Don’t be afraid to interview your GP to see if they are the right person for you to deal with.
Again, there isn’t a handy link for this one but ask if your local health authority (or any neighbouring ones) have a CFS team (possibly based within or associated with occupational health). I was lucky to be living in Bath at the time I was diagnosed and was referred to the Adult CFS/ME clinic at the Royal Mineral Hospital wich was a big help.
Action for ME
Action for M.E. is the leading UK charity for people with Myalgic Encephalomyelitis (M.E.) and their carers.
I have used a few of his recordings (deep sleep, loose weight and get fit) and find that they (if nothing else yet) help me to achieve a natural, restful sleep without having to resort to sleeping pills. Also, any positive reinforcement you can get with CFS is welcome.
Activity, Rest & Sleep Logs:
Standard: with High/Low/Medium energy activity, Sleep and Rest categories, £1.50.
Customised: Comment on this page if you would like to have a spreadsheet created with your own bespoke categories. Price dependent on level of customisation.